Fibromyalgia Awareness Month
It's Fibromyalgia Awareness Month this May. Our founder and CEO, Nick, opens up about his experiences with Fibromyalgia.
It's Fibromyalgia Awareness Month this May. Our founder and CEO, Nick, opens up about his experiences with Fibromyalgia.
Fibromyalgia is a hard condition to explain.
It’s even tough for me to wrap my head around, and I’ve been living with it for years.
Doctors often label it as a neurological disorder—essentially, a full-body condition where your brain misinterprets pain signals. But, in reality, Fibromyalgia is a diagnosis of exclusion.
It’s what you get when doctors have ruled out everything else, and they still can’t pinpoint the cause. So, they give you the Fibromyalgia label—whatever that means.
For me, Fibromyalgia means that pain is a constant companion.
It’s never the same spot twice. One day it’s my leg, the next it’s my arm, then my wrist.
The pain feels like someone’s squeezing my limb with all their strength—or sometimes, like there’s a knife lodged in it.
I deal with this pain almost daily, usually starting around 10 pm. Though recently, I’ve started feeling it in the mornings, too.
I must have been experiencing some version of it since childhood. I used to think that feeling pain when you’re tired was just a normal part of life.
It wasn’t until I was 32 that I learned it’s not.
Fibromyalgia is what I imagine it must feel like to be in your 80s when your body seems to turn against you.
I’ve tried all sorts of treatments—cannabis, experimental medications, hot and cold therapy, you name it.
I think I've developed a pretty high pain tolerance by now, and it’s become background noise.
To everyone living with Fibromyalgia: your strength is real, even when the world can’t see it. We may not have all the answers, but we keep going—and that’s something to be proud of.