Welcome to Spoony Stories ❤️🥄 Sharing stories is a powerful reminder that we're not alone. Each week, we share stories from our vibrant community to hear all about their experiences being neurodivergent, chronically ill and disabled, and to get to know some of the voices that make our Spoony community so wonderful. This week, we chat with Jacqueline from the United States!
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Welcome to Spoony Stories ❤️🥄 Every week, we are simply bowled over by the kindness and generosity of our brilliant Spoony community! We really love such getting to know some of the people who make Spoony so wonderful and learning more about their experiences with neurodivergence, chronic illness and disability.
This week, we've been chatting with Jacqueline from the United States. They opens up about what it's like to be neurodivergent and disabled, what makes Spoony so different from other social media apps, and much more! ♥️
Are you neurodivergent, chronically ill, and/or disabled?
Neurodivergent and disabled.
What health conditions do you have?
Autism, Anxiety, Depression, Irritable Bowel Syndrome (IBS), and Myopia.
How do you explain your health conditions to other people?
I approach it differently based on the person. I hope that even if they don't understand everything that I tell them, they will at least respect the accommodations that I need.
What impact do your health conditions have on your daily life?
My health often worsens my quality of life by intervening with important tasks and impacting my attention span. I may not always have the energy to put on a smile or laugh at a joke I don't find funny. When my neutral face is mistaken for anger, sadness or disinterest, it can affect my relationships with friends and family.
What barriers have you experienced in making friends and connecting with people?
I've had issues making long-lasting friendships for most of my life. Even now in college, I'm struggling. It's hard to make more than one or two friends at a time. Some people tell me that I take things too literally and too personally.
What's been your experience on Spoony so far?
I love that I feel so much less alone on Spoony. Most, if not all, the users I interact with are disabled, neurodivergent or chronically ill, and therefore have a better understanding of what I go through. I don't need to defend or explain myself to anyone because they get it! I find all the ableism on other social media apps exhausting so Spoony feels really refreshing.
Each week, we share stories from the incredible Spoony community in our newsletter, podcast, and on social media. Share your story with us.